Friday, September 29, 2006

Back at UCLA

Hey there friends! After being discharged from Children's Hospital last week...we are back in the hospital again. Lincoln was doing so great at home for about a week until he started having symptoms of respiratory distress. His cardiologist said that his heart is in a state of congestive heart failure due to the weakening of his right ventricle. When we left the hospital last week after having our scary little episode his heart function got stronger again....but while we were home last week it started poopin out again. They are not sure why it keeps getting tired....it could be: 1 - his chronic heart condition and all the surgeries he has had are tiring out his heart. 2 - a viral infection attacking the heart (called Myocarditis). 3 - his heart needs more medicine, rest and time to recover from the problem two weeks ago. Whatever it is, it is being categorized as Cardiomyopothy. There is not much you can do for Cardiomyopothy other than watch to see if it gets better and try to help strengthen the function with medicine. If that doesn't work...Lincoln will need to be evaluated for the possibility of a heart transplant. Lincoln's cardiologist encouraged us to entertain the idea of going back down to UCLA for evaluation and a second opinion because they deal with kids that have Cardiomyopothy all the time. Plus, if they can't figure it out and Lincoln needs to be put on a heart transplant list, we will already be at the hospital that does transplantation because Children's Hospital in Fresno doesn't. So here we are, Lincoln was flown down in an airplane by the Children's Hospital transport team to UCLA yesterday. We arrived a few hours later to find ourselves at our old stompin ground. Its hard to be back down here but if this is what's best for Lincoln than it's a must! It is also a praise to be able to stay with our host family again...the Hayes...they are truly a blessing! So pray for Lincoln...over the next couple of days they will watch and evaluate what his heart is doing. They will do tests and experiment with different types of medicine. They will try to get him back home again....or they might have to put him on a heart transplant list. The future is in the Lords hands and we praise him for each new day of life! We will keep you updated on his progress and RECOVERY! Thank you all for your continued love, support and prayer for Lincoln and our family. We love you all! J&K

11 comments:

melissa braun said...

We will continue to pray for Lincoln. He is such a trooper! You guys are amazing and have had to endure so much. May you find peace and encouragement through the prayers of all your friends and family.

Love you lots!!
Melissa

J Crew said...

Christine and I are daily praying for you guys that God will heal Lincoln and that others will come to know Christ through this time. We miss you guys and care about you guys a great deal.

Brady Nathan said...

We will pray for recovery and healing. Kristen, It was cool to see you last Friday at Michelle's:)

~Andrea

Anonymous said...

Dear Josh and Kristen,
You remain in our prayers.... Thanks for your awesome example of what it means to be a loving and commited family. We pray for your strength and for wisdom for the medical staff as they seek to care for Lincoln.
In Him,
Michelle, for the Tompkins

Anonymous said...

Hello...

We are thinking of you...and
praying for you all.

Mike, Terri & Matthew ~ Las Vegas

The Doswalds said...

It is a joy to know you two have a very powerful God and one strong child. We'll keep praying that the surgeons will actually be able to solve the problem. We want you guys home soon, and already miss Lincoln. Hang in there!!!

Anonymous said...

I will be saying a prayer for your family and for Lincoln! I read about you on a list serv. Best wishes- Diane from Kansas, mom to Adam & Nathan, carepages.com : AdamMatthew

Anonymous said...

May God's hands be all over you and your situation. He is there for you. Thank you for sharing your lives with us.
Jan and the ESA/Love INC tribe

SJ said...

We are praying for you! You are so right - each moment is in the Lord's hands and He is sovereign. Rest in His love and comfort! What a continued testimony you are to the Lord through this!

Theron & Lori Esau and kids said...

We are praying for you guys ... times 9!!! Whatever God chooses to do, we hope you are home with your beautiful son as soon as possible.
-Lori (4 all v us)

Anonymous said...

We just heard about Lincoln from the dachshund circus and want to join the group to pray for Lincoln. Hope he will be able to go home soon.
Wolfgang and Gerda Priebe

10/03/2006 3:30 PM