Back at UCLA

Hey there friends! After being discharged from Children's Hospital last week...we are back in the hospital again. Lincoln was doing so great at home for about a week until he started having symptoms of respiratory distress. His cardiologist said that his heart is in a state of congestive heart failure due to the weakening of his right ventricle. When we left the hospital last week after having our scary little episode his heart function got stronger again....but while we were home last week it started poopin out again. They are not sure why it keeps getting tired....it could be: 1 - his chronic heart condition and all the surgeries he has had are tiring out his heart. 2 - a viral infection attacking the heart (called Myocarditis). 3 - his heart needs more medicine, rest and time to recover from the problem two weeks ago. Whatever it is, it is being categorized as Cardiomyopothy. There is not much you can do for Cardiomyopothy other than watch to see if it gets better and try to help strengthen the function with medicine. If that doesn't work...Lincoln will need to be evaluated for the possibility of a heart transplant. Lincoln's cardiologist encouraged us to entertain the idea of going back down to UCLA for evaluation and a second opinion because they deal with kids that have Cardiomyopothy all the time. Plus, if they can't figure it out and Lincoln needs to be put on a heart transplant list, we will already be at the hospital that does transplantation because Children's Hospital in Fresno doesn't. So here we are, Lincoln was flown down in an airplane by the Children's Hospital transport team to UCLA yesterday. We arrived a few hours later to find ourselves at our old stompin ground. Its hard to be back down here but if this is what's best for Lincoln than it's a must! It is also a praise to be able to stay with our host family again...the Hayes...they are truly a blessing! So pray for Lincoln...over the next couple of days they will watch and evaluate what his heart is doing. They will do tests and experiment with different types of medicine. They will try to get him back home again....or they might have to put him on a heart transplant list. The future is in the Lords hands and we praise him for each new day of life! We will keep you updated on his progress and RECOVERY! Thank you all for your continued love, support and prayer for Lincoln and our family. We love you all! J&K